<span style="font-size: 14px">MONDAY CLOSING PLENARY</span>

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Monday, July 10, 2023
4:20 PM - 5:40 PM
Darling Harbour Theatre

Overview


Parenting with a disability - my experience accessing the health sector and my own health data
Nas Campanella Journalist & Disabilities Affairs Reporter, ABC News 🇦🇺

The Future is Accessible? The inclusion of disabled people and disability and function data in health records
Facilitator: Gillian Mason Patient & Community Involvement Lead, Hunter Medical Research Institute 🇦🇺
Panellists:
Dr Denis Newman-Griffis Lecturer in Data Science, University of Sheffield 🇬🇧
Liz Salmi Citizen Scientist and Patient Informatician 🇺🇸
Rachel Dunscombe Digital Futures, Academic, Government Policy Advisor 🇬🇧
Nas Campanella Journalist & Disabilities Affairs Reporter, ABC News 🇦🇺
Dr Juanita Fernando Patient Advocate & Vice Chair Australian Privacy Foundation 🇦🇺

It's time to upgrade healthcare: A fireside chat with technology leaders
Dr David Feinberg Chairman, Oracle Health 🇺🇸
Dr Louise Schaper FAIDH CHIA CEO, Australasian Institute of Digital Health (AIDH) 🇦🇺



Speaker

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Nas Campanella
National Disability Affairs Reporter
ABC (Australian Broadcasting Corporation)

Parenting with a disability - my experience accessing the health sector and my own health data

4:20 PM - 4:35 PM

Biography

Nas Campanella is the ABC’s disability affairs reporter. Nas started her career at the ABC as a cadet journalist in Sydney in 2011 before working as a regional reporter in Bega on the New South Wales far south coast. She then spent seven years working as a newsreader, reporter and senior producer for triple j and other ABC platforms. Nas has also undertaken projects with ABC International Development, running initiatives for people living with disability across the Pacific. Nas lost her sight when she was six months old. Nas also has a sensitivity condition called Charcot-Marie-Tooth which means she can’t read Braille.
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Gillian Mason
Consumer and Community Involvement Lead
Hunter Medical Research Institute

Facilitator: The Future is Accessible? The inclusion of disabled people and disability and function data in health records

4:35 PM - 5:20 PM

Biography

Gillian Mason is a proudly disabled physiotherapist researcher, patient representative, disability inclusion advocate and science communicator. She brings a dual patient-clinician perspective to the design and implementation of research. She explores how technologies can contribute to more efficient and intuitive healthcare, rehabilitation and living, as it intersects with healthcare when there's chronic illness to manage. At Hunter Medical Research Institute, as Consumer and Community Involvement Lead, she provides strategic advice, training and mentorship around patient and public involvement in healthcare research, and manages the Research Register. She is a member of the Australian Department of Health's Health Technology Assessment Consumer Consultative Committee, and a Consumer Representative member of the Medical Services Advisory Committee. Gillian is honoured to serve as a Board member of the Australasian Institute of Digital Health and, in that capacity, thrilled to be able to welcome you to MedInfo in Sydney!
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Dr Denis Newman-Griffis
Assistant Professor in Data Science
University of Sheffield

Panellist: The Future is Accessible? The inclusion of disabled people and disability and function data in health records

4:35 PM - 5:20 PM

Biography

Dr Denis Newman-Griffis (they/them), PhD, is a Lecturer in Data Science at the University of Sheffield, a Visiting Fellow of the National Institutes of Health Clinical Center, and a member of the UK Young Academy. Dr Newman-Griffis’s work investigates practices and methods at the intersection of disability and data science. They co-founded the workshop series on Artificial Intelligence for Function, Disability, and Health (AI4Function).
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Liz Salmi
Communications & Patient Initiatives Director
OpenNotes

Panellist: The Future is Accessible? The inclusion of disabled people and disability and function data in health records

4:35 PM - 5:20 PM

Biography

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. In this role, Liz aims to better understand the changing nature of patient-clinician communication in an age of increasing health information transparency. She does this by working alongside clinicians, hospitals, health systems, researchers, and most importantly, in partnership with patient advocates. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in patient engagement research initiatives; and an innovator, educator and investigator in international education and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. In 2021, Liz and colleagues were awarded a $12.8 million Center Grant from the National Cancer Institute to determine optimal methods for patient enrollment in a cancer registry—designed in partnership with patients. It is rumored Liz was the drummer in a punk rock band.
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Prof Rachel Dunscombe
Professor | Policy Maker | Industry advisor
Imperial College London

Panellist: The Future is Accessible? The inclusion of disabled people and disability and function data in health records

4:35 PM - 5:20 PM

Biography

Rachel has over 25 years’ experience in the UK NHS, academia, management consulting and technology industry. For the last five years she has been CEO of the NHS Digital Academy for the UK. In recent years she has also led the Arch collaborative global for KLAS research and supported the big 4 in consulting in Australia, New Zealand, US, Europe and low to middle income countries. Rachel offers specific expertise in digitising the workforce, the science of successful health technology deployment and open data. She is part of the open standards community and recently was voted to represent individual members and a deputy chair of the OpenEHR CIC , the global board for OpenEHR standards.
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Nas Campanella
National Disability Affairs Reporter
ABC (Australian Broadcasting Corporation)

Panellist: The Future is Accessible? The inclusion of disabled people and disability and function data in health records

4:35 PM - 5:20 PM

Biography

Nas Campanella is the ABC’s disability affairs reporter. Nas started her career at the ABC as a cadet journalist in Sydney in 2011 before working as a regional reporter in Bega on the New South Wales far south coast. She then spent seven years working as a newsreader, reporter and senior producer for triple j and other ABC platforms. Nas has also undertaken projects with ABC International Development, running initiatives for people living with disability across the Pacific. Nas lost her sight when she was six months old. Nas also has a sensitivity condition called Charcot-Marie-Tooth which means she can’t read Braille.
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Dr Juanita Fernando
Patient Advocate & Vice Chair
Australian Privacy Foundation

Panellist: The Future is Accessible? The inclusion of disabled people and disability and function data in health records

4:35 PM - 5:20 PM

Biography

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Dr Louise Schaper FAIDH CHIA
CEO
Australasian Institute of Digital Health (AIDH)

It's time to upgrade healthcare: A fireside chat with technology leaders

5:20 PM - 5:40 PM

Biography

Dr Louise Schaper is an innovator and a change agent who doesn’t sit still and whose passion and enthusiasm for digital health and health informatics is contributing to shaping the future of Australian healthcare. Her appointment as CEO came on the back of 10+ years of experience in, and applied passion for, health informatics. With a background as an occupational therapist and a PhD on technology acceptance amongst healthcare professionals, Louise is a world leader in allied health informatics and is intimately connected to Australia’s substantial health reform efforts, where digital health is a key enabler to achieving high quality, safe, sustainable and patient-centred care. In addition to her leadership of the Australasian Institute of Digital Health, Louise was on the Advisory Board for Stanford Medicine X 2013  conference, was part of the Australian Digital Health Agency’s Clinical Leads team and previously chaired the E-Health International Advisory Group of the World Federation of Occupational Therapists.
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Dr David Feinberg
Chairman
Oracle Health

It's time to upgrade healthcare: A fireside chat with technology leaders

5:20 PM - 5:40 PM

Biography

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