SESSION 148: <br/>Person-centred care comes first
MedInfo 8
| Saturday, July 8, 2023 |
| 1:15 PM - 2:45 PM |
| C4.9 |
Overview
C4.9
Presentations & panel
Presentations & panel
Details
Panel: Genomic data sharing: Balancing connectivity, insight and consumer control
Your genomic data should inform a lifetime of precision healthcare. What is the path to making that happen? This panel unpacks four big challenges in managing genomic data within the healthcare system.
- The technology needed for a common ‘plumbing system’ for genomic data and reusing that data
- The challenges of data sharing across boundaries in healthcare
- The divide between clinical and research uses of data
- The sovereign right of healthcare consumers to decide when and why their data is used
- Understand what user-centric genomics means
- Determine requirements for genomic data sharing
- Identify key issues in genomic data governance
Speaker
Jo Strother FAIDH CHIA
Principal Project Manager
QLD Health
Session chair
Biography
Dr Praveen Deorani
Senior Assistant Director
MOH for Healthcare Transformation
Personalised digital interventions for patient behaviour change
1:15 PM - 1:30 PMBiography
Praveen Deorani is a Senior Data Scientist at the Singapore Ministry of Health, Office of Healthcare Transformation. His responsibilities include using data science and predictive modelling techniques to understand and generate insights for programs by identifying relevant patterns in the Singapore public healthcare system. Praveen has extensive experience in the use of data science and data-driven insights in public healthcare delivery and digital health technologies. He completed his PhD in 2015 at the National University of Singapore.
Wei Thing Sze
Student
The University of Tokyo
A pharmacist-assisted personalised mobile health intervention to promote physical activity among type 2 diabetes patients
1:30 PM - 1:45 PMBiography
Wei Thing Sze is a pharmacist passionate in investigating mobile health solutions to empower patient self-care and achieve better clinical outcome.
Reuben Daniels FAIDH CHIA
Enterprise Architect
QLD Health
The Queensland Health Gender and Sex Sub Working Group (GSSWG)
1:45 PM - 2:00 PMBiography
Reuben Daniels is an Enterprise Architect and Chair of the Gender and Sex Sub Working Group in Queensland Health. He is also an HL7 Australia Board Director and co-chairs the Terminology Infrastructure Work Group and Terminology Services Management Group in HL7 International.
David Gray CHIA
Manager, Clinical Systems Support Team
QLD Health
The Queensland Health Gender and Sex Sub Working Group (GSSWG)
1:45 PM - 2:00 PMBiography
Experienced Clinical Information System (CIS) manager with a demonstrated history of working in the hospital & health care industry. Skilled in health informatics, mental health and addiction, health promotion, and healthcare management.
Keeley Reade
Senior Project Manager
Melbourne Genomics Health Alliance
Panel: Genomic data sharing: Balancing connectivity, insight and consumer control
2:00 PM - 2:45 PMBiography
Health Informatician with many years experience working with digital health products in several health domains. Keeley's most recent role is working with the team at Melbourne Genomics Health Alliance enhancing the GenoVic solution to allow laboratories share genomic data in a controlled and safe way.
Colleen Brooks
Digital Health Director
HealthConsult
Panel: Genomic data sharing: Balancing connectivity, insight and consumer control
2:00 PM - 2:45 PMBiography
Colleen Brooks is the Director Digital Health and is based in our Sydney office. She has extensive senior executive experience in leading digital health initiatives and consulting to public and private sector organisations. Before joining HealthConsult, she completed a major consultancy as G20 Digital Health policy advisor to 2020 G20 Presidency and Digital Health Advisor to Deputy Minister of eHealth, Saudi Arabia. This work built on the expertise she gained from consulting to Australian private and public sector organisations (hospital, general practice, and allied health) around digital health initiatives.
Greg Pratt
Research and Evidence Manager
Queensland Aboriginal and Islander Health Council
Dr Natalie Thorne
Lead, Genomics Information Management
Melbourne Genomics Health Alliance
Panel: Genomic data sharing: Balancing connectivity, insight and consumer control
2:00 PM - 2:45 PMBiography
Dr Thorne is an expert across genomics, bioinformatics and digital health. Her work has driven the development of a clinical genomics platform in use by six leading pathology laboratories. Natalie leads a team of specialists dedicated to ensuring the platform enables precision healthcare in Australia.
Dr Timothy Fazio
CMIO
The Royal Melbourne Hospital
Panel: Genomic data sharing: Balancing connectivity, insight and consumer control
2:00 PM - 2:45 PMBiography
Tim is a specialist physician and certified health informatician, currently employed in both clinical and informatics roles.
Tim has many years' experience in the public health system, working in a variety of metropolitan and rural health services, as well as community mental health. His current work spans inborn errors of metabolism and general medicine at a major, metropolitan teaching hospital.
